Σύντομη Περιγραφή
Maria-Efraimia is fighting for a chance in life ever since she was born, since she has been diagnosed with an extremely rare syndrome, called Megacystis-Microcolon-Intestinal Hypoperistalsis Syndrome (MMIHS). Even though she has been subjected to numerous operations, the baby cannot be fed through the digestive tract and the only way to stay alive is by the use of parenteral nutrition. The baby must be immediately subjected to further surgical procedures, however the enormous cost of her treatments, has worn out her family.
You can too support our effort to save this child’s life!
Together we’ve made it happen for the baby girl Maria Efraimia!
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13.200,00 €
Στόχος -
13.893,65 €
Συγκεντρώθηκαν -
Target Goal
Πληροφορίες Εκστρατείας
Maria-Efraimia is struggling on a daily basis in order to stay alive, since she has been diagnosed with an extremely rare syndrome, called Megacystis-Microcolon-Intestinal Hypoperistalsis Syndrome (MMIHS), which prevents feeding through the digestive tract.
This severe disorder of the digestive system prevents the proper function of several organs, such as the stomach, the intestines, the kidneys and the bladder. The baby cannot be fed through the digestive tract and the only way to stay alive is by the use of parenteral nutrition. Till this day, the little girl has been subjected to 11 surgical procedures and in spite of the doctor’s efforts, her condition has not improved. Parenteral nutrition requires close monitoring by specialized medical stuff, since this form of nutritional support causes frequent infections and septic episodes, which require urgent hospitalization.
The baby must be immediately subjected to further surgical procedures that will ensure the proper function of her parenteral nutrition. Furthermore, the procedures will improve the development and function of her vital organs. The family cannot longer afford the enormous cost of her constant treatments.
Let us all support this little baby throughout this ordeal. Any contribution, big or small, can make a great difference!
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15-04-2022
Together we’ve made it happen for the baby girl Maria-Efremia!
Once again we united and managed to secure the amount required for the treatment and surgery of little Maria-Efremia.
The one-year-old little girl has been fighting a hard battle since the day she was born as she suffers from a rare and extremely dangerous disease of the digestive system – bowel hypokinetic syndrome – resulting in 3 tubes permanently in her body and her life being completely dependent on the necessary medical support.
Thanks to the offer of all of you, our little one will receive all the necessary treatments for the rehabilitation of her gastrointestinal system as well as the operations that she will need to undergo in the near future.
Many thanks on behalf of the family for their valuable support!
An act of kindness of each of us is an opportunity of a lifetime for one more child!
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