The story of Vasilis
On October 25 of 2020, little Vasilis, who was 6 months old at the time, was rushed to the hospital after manifesting high fever and ear swelling. The little boy had been hospitalized there for 3 weeks, while the attending physicians were trying to understand what was causing the high fever. Since the doctors couldn’t make a diagnosis, he was transferred to “Agia Sofia” Children’s Hospital in order to undergo a series of tests. The results indicated that the little boy suffered from a rare form of chronic granulomatous disease, which requires a bone marrow transplant. Crushed by this unforeseen situation, his family is struggling to support him in any way possible. In the midst of the pandemic, they have to constantly travel back and forth, in order to care for their baby who he is being hospitalized in Athens. Vasilis still has a long way to go, since according to medical data, he suffers from an extremely rare form of this disease and the medical treatments in order for this child to survive are very expensive.
Let us all stand by this family throughout this ordeal and pray so that little Vasilis returns home as soon as possible!
Update 29.01.2021
After a long-term hospitalization, Vasilis got discharged from the hospital, where was diagnosed with a rare form of chronic granulomatous disease, which requires a bone marrow transplant. All this time, he was subjected to all the necessary treatments, while being closely monitored by the medical and nursing stuff. When his condition got stabilized, the attending doctors recommended that he should return home, until a compatible bone marrow donor was found. Following doctor’s orders, the little guy returned home, where he now receives his treatments in a fully sterilized environment. He has managed to gain some weight and he frequently visits the hospital in order to be subjected to the necessary tests. His father and little sister are taking good care of him and thanks to your defining contribution they have managed to overcome their daily struggles.
But the problems of this family don’t stop here. While the baby was struggling to stay alive, the mother suffered a heart attack and was rushed to the UCI of the University Hospital. The doctors managed to keep her stabilized, but the mother suffered acute quadriplegia. Currently, she is unable to move and function properly therefore she is being hospitalized to a rehabilitation center, where she is subjected to a series of treatments in order to get better. We still don’t know how long it’s going to take until the mother makes a full recovery, since her condition depends on various factors. The mother wasn’t informed about her baby’s condition until recently, since this information could have had a negative impact on her already critical condition. Due to these difficult circumstances the father is unable to work, since he has to take care of his wife and children.
We would like to kindly thank all of you for supporting this family! The boy and the mother still have a long way to go, but thanks to your defining contribution, the “Act of Kindness” organization will keep on supporting this family for as long as needed.
Update 06.04.2021
Thanks to your defining contribution, Vasilis’ health has shown great improvement. He still remains home, where he is being submitted to all the necessary treatments, while he is being cared for by his father and little sister. If his condition remains stable, he will soon be transferred to a specialized medical center along with the candidate donor, in order to verify their compatibility. His mother’s condition has also shown great improvement, thanks to the care of the medical and nursing stuff of the rehabilitation clinic. She now has full control of her abdominal muscles, as well as parts of her left hand. The attending doctors feel very optimistic about her condition. The mother keeps on fighting, while praying for the best possible outcome for her and her son.
We would like to kindly thank all of you for supporting this family. The little boy and the mother still have a long way to go, but thanks to your defining contribution, the “Act of Kindness” organization will keep on supporting this family for as long as needed.
We will keep you updated.
Update 24.05.2021
The latest information regarding Vasilis’ condition, are very promising. Thanks to your defining contribution, and after being submitted to all the necessary treatments, the little baby was transferred today, on 24.5.2021, to the Bone Marrow Transplant Unit (BMTU) of “Agia Sofia” Children’s Hospital, accompanied by his father. According to the attending doctors, the bone marrow transplant procedures have already begun. After a series of tests, the doctors concluded that the person who can offer him a chance in life, the person who constitutes a compatible donor, is his older sister. The little baby will remain hospitalized for the next month and a half until the procedure is completed. Then, he will be transferred to a specially-formed, sterilized wing, where he will remain for 2 more months, in order to receive the medical care that he needs. The mother is still being hospitalized at the rehabilitation clinic and she will remain there until she makes a full recovery.
Update 30.07.2021
We are deeply saddened to say goodbye to our beloved Vasilis, who spent the past 9 months fighting this uneven battle to stay alive.
On May of 2021, following doctors’ recommendations, the 13 month-old baby was subjected to a bone marrow transplant. In spite of the great medical care he had received, the little baby passed away, while in the ICU, due to transplant complications.
We would like to express our sincere condolences to his family, for their terrible loss, and we pledge to support them for everything they might need.
Rest in peace little guy!
*The sum that was raised thanks to all of you, will be given to his family, as a minimum contribution for everything they are going through.